tag:blogger.com,1999:blog-9095270985170721876.post6199814023896555236..comments2024-03-24T23:22:43.753+00:00Comments on Tony's Musings: Family Nursing and Home Care Cutbacks: A CommentTonyTheProfhttp://www.blogger.com/profile/10486414706261508994noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-9095270985170721876.post-75915795472470267342011-05-29T07:10:20.888+00:002011-05-29T07:10:20.888+00:00We have seen this too, albeit from a mainland UK p...We have seen this too, albeit from a mainland UK perspective.<br /><br />My wife's eldest daughter suffers from a complex set of disabilities and a rare genetic syndrome. We have seen all the legislation describing "entitlements" - but the way it generally works is that one is entitled to be entitled, and the likelihood of you ever getting anything unless you fight for it (and often you have to fight dirty) is very low.<br /><br />This has an impact well beyond the needs of the child. It transforms (perhaps <i>deforms</i> is not too strong a word) the personality of the parent and the siblings. The knowledge that your success is likely to ensure someone else who needs support fails to get it can leave you either with a deep sense of guilt or a failure of boundaries.<br /><br />It shouldn't do. The measure of a civilised society (<i>pace</i> former Jurat Le Brocq) is the way that it treats those at its margins: the children, the sick, the prisoner, the disabled. On this measure Jersey is failing, and failing badly.<br /><br />James McLarenAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-9095270985170721876.post-88455678221764346362011-05-26T21:09:41.874+00:002011-05-26T21:09:41.874+00:00Thank you for bringing this to our attention Tony....Thank you for bringing this to our attention Tony. This is a very serious situation and once again this is going to hit the most vulnerable people in our society. The States are out of control and they really don’t give a damn about the ordinary people in the street. I fear that this is only the beginning and sadly children and adults alike will needlessly suffer as a result! <br /><br />CarrieAnonymousnoreply@blogger.com